Enjoy an evening of shopping, spirit, friendship and goodwill while raising money and awareness for a rare disease called Friedreich’s Ataxia.
Friedreich’s ataxia is a rare disease that not many have heard of, although one in 100 people carry the gene that can pass on the disease.
In 1995 when Mary Caruso heard the words Friedreich’s ataxia as a diagnosis for her then eight-year-old daughter Sam, she was filled with confusion, fear and disbelief. As they made it through the initial mourning phase and onto the second diagnosis of her younger daughter, Alex, their lives were changed forever.
Friedreich’s ataxia is a life shortening, progressive and devastating disease. It robs people of their ability to walk, talk and use their hands appropriately. It causes heart disease, diabetes, hearing loss and blindness.
Although the road has been challenging, as a family they continue their efforts to find a treatment and a chance for the girls to fight for their lives. Over the past 18 years research has forged ahead and made huge strides. A treatment is closer than ever but only because of efforts such as these.
Once again this year, the Caruso and Bode family will host their “Hearts of Hope Holiday Shopping Night for a Cure.” They will open their home to the community, highlight vendors to sell their wares, enjoy music from the local youth, and revel in the magic of goodwill. It will be a night of spirit, friendship and kindness as people come together to celebrate life and their efforts toward a cure for Friedreich’s ataxia.
Just a few of the vendors include: Pampered Chef, Silpada, Keelin Bret Jewelry, Lovet Shop, Over the Moon Vintage, Enchanted, Mad Hatter and More and Party Lite. All vendors will donate between 20% and 50% of their proceeds.
The event will take place on Saturday Dec 7th from 4:00 p.m. to 9:00 p.m. at 1 North Street, North Branford.
For information or to donate to The Friedreich’s Ataxia Research Alliance email Caruso at firstname.lastname@example.org